The Mama Posts: Reflections on my Mother, January 8, 2013

Published by Tuesday, January 8, 2013 Permalink 0
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by King James Version

Mama went blind nearly 7 years ago due to an autoimmune disease called “temporal arteritis.” For a quilt artist and designer, a woman who expressed herself through images rather than words, there could have been nothing more devastating. She felt her life had ended and didn’t want to go on. We tried to give her bits of cloth, yarn, ribbon, wire, etc., in hopes she’d learn a new way of making sculptures or sewing patchworks in some crazy, original way using her fingers to feel her way around, but she couldn’t even see what she’d made, so it was of no interest to her. She would usually try for only a very few minutes and then throw it into the air in anger. She listens to audio books; her caregivers sing with her, read to her, play music for her – all things she loves — but she has lived in deep discontent because she has lost her most precious sense. Now she is physically diminished because of the disease, and speaks in the King James Version all the daylong. “Dear Lord,” she says, “let me go home,” where I will be able to see (I add).

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